This Is What Fibro Fog REALLY Means Because It’s More Than Just Forgetfulness

A girl with fibro fog
Unsplash / Toa Heftiba

When you suffer from fibromyalgia, everyone assumes the worst part is what happens to your body. Yes, there will be times when you feel like knives are stabbing you through your toros. Yes, there will be other times when you feel a dull ache that just won’t disappear. But what most people don’t realize is that fibromyalgia can also impact your mind.

You might struggle with socializing. In the middle of speaking, you might forget how to finish your sentence. You might lose your train of thought and completely forget what you were even talking about in the first place. Even worse, you might get stuck on a word, an easy word, a kindergarten word. It will make you feel like you are going crazy. It will be the worst feeling in the world.

You might become forgetful. You might forget simple things, things that you never thought it was possible to forget. You might forget to take a shower in the morning. You might forget to eat breakfast. You might forget to watch the show you have been looking forward to seeing all week long.

You might have trouble retaining new information. You might accidentally annoy your friends when they tell you about their day and you can’t follow along with their story. You might accidentally upset your spouse when you make plans with them and completely forget by the time the occasion arrives. You might lose new information as quickly as you learn it.

You might get distracted easily. There might be times when you leave the room to grab a glass of water, but once you reach the kitchen, you will have no idea of why you got up in the first place. You might not be able to remember what you were planning on doing only thirty seconds earlier. The thought will have completed vacated your brain.

You might lose things. You might misplace your car keys. You might lose track of your cell phone seconds after you use it. You might have no idea where you left your glasses even though they are still on your head. You might not be able to find valuable items that you hate yourself for losing.

You might have trouble sleeping. No matter how tired you are, no matter how stressful your day has been and how badly you want to get some shut eye, you might not be able to fall asleep. Your brain might not give you a second of rest. You might wake up even more exhausted than the day before, even though you thought that was impossible.

You might feel like you’re losing little pieces of yourself. You might not remember the words for simple things, even if you are highly educated. You might forget the dates of birthdays and anniversaries, even though you aren’t that old. You might feel like everyone is looking at you like a helpless child, even though you know you aren’t stupid.

You might feel like you are completely lost. You might feel like fibro fog is ruining your entire life. You might lose hope. You might lose confidence. You might feel like the world is unfair because you don’t deserve to go through such physical and mental distress — but you have to keep holding on. You have to keep going because you are strong enough to get through the pain. TC mark

Juliet Lanka

Hater of love. Lover of horror.

Trace the scars life has left you. It will remind you that at one point, you fought for something. You believed.

“You are the only person who gets to decide if you are happy or not—do not put your happiness into the hands of other people. Do not make it contingent on their acceptance of you or their feelings for you. At the end of the day, it doesn’t matter if someone dislikes you or if someone doesn’t want to be with you. All that matters is that you are happy with the person you are becoming. All that matters is that you like yourself, that you are proud of what you are putting out into the world. You are in charge of your joy, of your worth. You get to be your own validation. Please don’t ever forget that.” — Bianca Sparacino

Excerpted from The Strength In Our Scars by Bianca Sparacino.

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