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Living with a chronic illness is unpredictable, but trying to plan for the day or week ahead can still help with managing all the things we still have to keep up with, despite our pain and illness.

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You can never be fully present or in control. 

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As I sit here soaking in a hot Epsom salt bath for the third time this week, I’ve been contemplating the best way to explain how I, or anyone, handles living with Hidradenitis Suppurativa.

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I live in a very progressive part of the country where almost everyone around me believes in equality, but it is not the case everywhere.

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The quiet moments expose all the bloody, broken parts of me that have yet to heal.

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Remember, it’s okay to say no.

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It doesn’t matter who you are or how long we’ve known each other. If you get a text from me, you probably aren’t getting the first version.

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I have to do everything ordinary even though at the back of my mind I know, it’s all pointless and temporary.

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Remember that this too shall pass.

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If it’s weighing on your mind, if every drink, every night out, every bottle seems like another added weight onto your shoulders that you’re struggling to hold up…it’s alright to set a bottle or two down and walk away.